{"id":266,"date":"2024-11-15T22:08:37","date_gmt":"2024-11-15T22:08:37","guid":{"rendered":"https:\/\/austincountynewsonline.com\/hello\/?p=266"},"modified":"2025-11-06T15:55:24","modified_gmt":"2025-11-06T15:55:24","slug":"episode-4-the-ibc-breast-cancer-network-foundation-with-terry-arnold","status":"publish","type":"post","link":"https:\/\/austincountynewsonline.com\/hello\/episode-4-the-ibc-breast-cancer-network-foundation-with-terry-arnold\/","title":{"rendered":"Episode 4: The IBC Breast Cancer Network Foundation with Terry Arnold"},"content":{"rendered":"

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November 15, 2024<\/h4>\n

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Episode 4: The IBC Breast Cancer Network Foundation with Terry Arnold<\/h1>\n

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In this compelling episode of Hello Austin County, we\u2019re joined by Terry Arnold, a 17-year survivor of Inflammatory Breast Cancer (IBC) and founder of the IBC Network Foundation, a global organization dedicated to research, education, and awareness of one of the most misunderstood and underdiagnosed forms of breast cancer.<\/p>\n

Terry shares her powerful personal story\u2014from her sudden and confusing symptoms, to being misdiagnosed multiple times, to ultimately receiving a life-altering diagnosis of triple-negative IBC. Her experience exposed a devastating truth: IBC is typically diagnosed at Stage 3, often missed by standard screenings like mammograms and ultrasounds, and is frequently mistaken for infections such as mastitis.<\/p>\n

Throughout the episode, Terry breaks down what makes IBC so different from the \u201cpink ribbon\u201d narratives we often hear during Breast Cancer Awareness Month. She explains how this cancer does not present with a lump, why MRI is the most reliable imaging for detecting it, and how easily its symptoms\u2014redness, swelling, itching, or a faint blush on the breast\u2014can be dismissed by both patients and providers.<\/p>\n

With the aid of educational slides and actual patient imagery, Terry helps viewers recognize the early warning signs and learn how to advocate for a proper diagnosis, even when initial tests come back negative. She also shares shocking statistics: despite its severity, IBC receives only a fraction of breast cancer research funding, yet contributes to a disproportionately high number of deaths.<\/p>\n

We also learn about the humble but determined beginnings of the IBC Network Foundation, which Terry launched from her kitchen table after raising $30,000 in just six weeks for an underfunded research project. Today, her foundation has contributed over $2 million in seed funding, helped start international sister organizations, and successfully pushed for IBC to be presented at major global cancer conferences for the first time.<\/p>\n

This episode is not just informative\u2014it\u2019s a call to action. Terry reminds us that awareness alone isn\u2019t enough; we need education, advocacy, and funding to save lives. Whether you’re a patient, parent, spouse, medical professional, or simply someone who cares, this conversation will give you the knowledge and tools to make a difference.<\/p>\n

If you\u2019ve never heard of Inflammatory Breast Cancer, this episode could open your eyes\u2014and maybe save someone you love.<\/p>\n

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\ud83c\udf99\ufe0f Host:<\/strong><\/h3>\n

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Shelley Stuessel-Brian<\/strong><\/h2>\n

Director of Operations, Austin County News Online<\/span>\u00a0& Co-Creator, <\/span>Hello Austin County<\/em><\/h3>\n

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Greg Stuessel<\/strong><\/h2>\n

Publisher, Executive Producer, Technical Director
Austin County News Online & Austin County Media<\/span><\/h3>\n

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\ud83c\udf99\ufe0f Guests:<\/strong><\/h3>\n

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Terry Arnold, <\/strong>\u00a0IBC Breast Cancer Network Foundation Founder<\/h2>\n

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\ud83c\udfa7 Episode Highlights<\/strong>:<\/h3>\n

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\u23f0 00:48<\/strong> \u2013 What is IBC?
\u23f0 01:06<\/strong> \u2013 IBC symptoms: swelling, rash, itching, and signs mistaken for injury
\u23f0 02:03<\/strong> \u2013 Misdiagnosis and the challenge of early detection
\u23f0 02:37<\/strong> \u2013 The shocking lack of research funding for IBC and other late-stage cancers
\u23f0 02:56<\/strong> \u2013 IBC affects younger women\u2014some as young as 19
\u23f0 02:56<\/strong> \u2013 Terry\u2019s personal story begins: misdiagnosis, delay, and finally a biopsy
\u23f0 04:33<\/strong> \u2013 Why MRI is more effective for detecting IBC than mammograms or ultrasounds
\u23f0 06:28<\/strong> \u2013 Final message: know your body, advocate, and share to save lives
\u23f0 09:53<\/strong> \u2013 Global impact: Terry’s work expands internationally and onto conference stages
\u23f0 12:57<\/strong> \u2013 Racial disparities: higher incidence and worse outcomes among Black women
\u23f0 14:41<\/strong> \u2013 Founding the IBC Network Foundation after a grassroots $30,000 fundraiser<\/p>\n

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